Kaitlyn’s Story
Kaitlyn has always been a dedicated student, making high honor roll & always giving 110%. She has been dancing since the age of 3, and began competitively dancing at the age of 9. Her favorite...
View ArticlePediatric Long Covid: Caregiver Survey June 2022
Our Pediatric Caregiver survey is intended to collect community information from caregivers of kids under age 18, who have Long Covid, in the United States. The survey will take approximately 10-15...
View ArticleCelebrities Speak Out on Long Covid
Post-Covid conditions do not discriminate. This week we would like to share with you some of the famous Long Haulers who are speaking out about their health stuggles since catching Covid. NBC New York...
View ArticleHappy Birthday ADA!
Today is the 32nd birthday of the American's with Disabilities Act, and we are starting to quantify the effects of COVID-19, and post-viral illness on the American working class. The post Happy...
View ArticlePOV: The Benevolent Violence of an Unmasked Hospital
The lack of masks in hospitals means seeking vital care comes with unnecessary risks. This is what the collective abandonment of disabled people looks like. The post POV: The Benevolent Violence of an...
View ArticleNavigating the Holidays with Long Covid
Guest post by Jen Roberts Holidays are often portrayed as this ideal, cheerful and cozy time spent with family. But real life doesn’t always end up that way. It tends to be a mixed bag with some highs...
View ArticleSammy’s Story
The phone rings. It is 10am and the middle school is calling for us to come pick up our son Sammy. My husband and I exchange glances. “He is only making it for an hour.” After a year and a half, long...
View ArticleTREAT Long Covid Act (HR 7482)
The TREAT Long Covid Act authorizes Centers of Excellence for post-Covid multidisciplinary care. The post TREAT Long Covid Act (HR 7482) appeared first on Long Covid Families.
View ArticleThe Price of Reinfection
My son started sneezing, coughing, and had a runny nose, again... I kept my kids home for the 2020-2021 school year with the uncertainty of COVID. My motto has always been better safe than sorry and...
View Article#PandemicAbleism
#PandemicAbleism is ableism amplified. It’s going from a whisper to a scream. It’s staring you straight in the face as it minimizes your existence. Insisting that vulnerable people can just “stay home”...
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